Journal Entry 23
Clinic, Old River Ramble
Monday a week ago Julie and I went to our last clinic. The news wasn’t really that bad because we went with low expectations. At the end of the day we agreed to meet with the neurologist every six weeks, and with other specialists as needed.
In particular, we are working with the augmentative communications guy to get a special device that will talk for me. That should take about a month. (I can no longer talk and I can only whisper for a few hours in the morning. The family does reasonably well with lip reading but the process is tedious and unsatisfactory.) After the equipment arrives I will probably go into Hospice care. I qualify for Medicare on June 1st.
This Saturday was the Old River Ramble, a 10K, 5K or 1 mile event that began and ended on the grounds of Cedaroak Primary School. Julie guided my wheelchair while my sister Diane and sister-in-law Teri pulled my breathing equipment in a wagon to get me through the 1 mile walk. Race fans cheered me on the last hundred yards to the finish line! I saw people I have not seen in a couple of years. It was a lot of family fun.
This week, Julie, Diane, and I went to the Crystal Springs Rhododendron Gardens. Lightly visited this day, the gardens were a peaceful way to spend the last day of glorious sunshine this week.
I am dictating this journal entry through my sister, Diane. As noted above, my ability to communicate is about nil. My journal entries will appear very infrequently from now on.
